20247589_1900845293573972_6553534300030194330_oLesson #1:  Paddle boarding visually impaired is the perfect illustration to describe the continuum of blindness that confuses the public (i.e. for people who are perplexed when they see someone with a guide dog or cane reading a text message with their eyes).  

Navigating around Newport Harbor today reminded me of my favorite quote about my eye disease, Retinitis Pigments. ”RP is seeing a tiny piece of paper across the room and then tripping over an elephant on the way to pick it up.” I paddled hard to the right in order to avoid a small buoy, feeling extremely proud of myself for spotting the bobbing mound of plastic, only to ram the tip of my board directly into a giant boat, which seemed to literally appear out of nowhere, though it rocked there gently all along. That’s RP, my friends: the person standing silently by the elevator, unbeknownst to you, who suddenly says “hi”, startling you to a halt. The trickery of RP is that you see many things. And then you don’t. You think you’re gliding along just fine. And then you crash. You see just enough for your mind to convince you that you’re seeing the whole picture. But you’re not.

The mobility help of a guide dog or cane might seem confusing or unnecessary to some. But it isn’t. Mobility aides keep second-guessing to a minimum and prevent run-ins with mute elephants and strangers near elevators who come out of nowhere (and perhaps with silent sea vessels if they were useful in water). #blindpaddleboarding #guidedogsfortheblind

Continue reading

This blog has unintentionally become a long lost friend. The kind of friend that you treasure and wish you stayed in touch with more. As the days pass by, this friend frequently comes to mind and yet the fullness of life continues to distract from finding time to connect. But this friend is always there when you return, waiting to pick right back up where you left off. Alas, so much time has passed that a quick text “hello” won’t do.

Now here we are, finally sitting down for that long awaited cup of coffee. Let’s catch up.

First off, I’m going back to school! I know, can you believe it?! Here I am teetering on the tail end of my 30’s with 2 young children, and I’m going to be a student once again. I’ll be pursuing my MSW (Master of Social Work) at the University of Washington in Seattle beginning this fall. My husband pointed out that I will be on campus with students who were born the year I graduated from undergrad. Super helpful fact – thanks babe.

Classes haven’t even started yet, and I’m already behind on my reading. I’m excited and slightly overwhelmed as I peruse the course schedule for this 3 year program. Between research papers and commuting to Seattle for classes, I will find time to give updates on my new life as a student/wife/mom/daughter/sister/friend/yogi/grant-writer/crisis-line advocate/blogger.

Now I want to tell you all about my crazy amazing summer. It started off with that retreat I’d been talking about forever. Yes, the Brene Brown Rising Strong retreat at the National Ability Center in Park City, Utah. I’m not sure if I should start with the inspiring women I met, or the 35 foot high climbing wall/ropes course, or water skiing for the first time, or breath-taking hikes, or the magical disappearing foot scrub. It truly was an experience I will cherish forever. Oh, and did I mention the group of bad ass blind women with me on this retreat? Our tribe continues to grow.

Joy and Jenelle wearing sunglasses and helmets at the high ropes course in Park City, Utah.

Next up, family camp at Enchanted Hills in Northern California. Incredible camp counselors and staff, HOT weather, the best talent show I’ve ever attended, and quality time for the Thomas/Landgraf families. It doesn’t get much better than that. You have to listen to the fun interview with Joy and family from the last day of camp.

My 4 year old son riding a horse with a camp counselor while another camp counselor leads the horse at Enchanted Hills Family Camp.

My 4 year old son riding a horse with a camp counselor while another camp counselor leads the horse at Enchanted Hills Family Camp.

I can’t leave out my trip to Portland to see my best’ies combined with a visit to the Casey Eye Institute to meet with a new retina specialist. I will have to tell you all about that visit over our next cup of coffee, as some of the details are interesting. My husband and kids picked me up from my appt, and with my eyes fully dilated, we headed straight to Mt. Rainier where we enjoyed meeting up with family. One of our beautiful hikes included a rickety bridge with a sign that read “One person at a time”. Whoever said I wasn’t a risk taker?

Jenelle standing on long thin suspension bridge.

Jenelle standing on long thin suspension bridge.

After returning from all these travels, we were blessed to have a full house of visitors throughout the remainder of July and August. If we had more time, I would tell you about all the fun we had rafting the river and SUP boarding at the lake, followed by delicious BBQs. But this cup of coffee is about done, so we’ll need to schedule another one. Hopefully it won’t be too long until next time.

Oh, and did I tell you Joy started a new job? Well, I’ll let her tell you about that.

Pasted Graphic.tiffEHCPIC    In July, our families attended Enchanted Hills Camp in Napa, CA, an incredible 4-day family camp run by the San Francisco Lighthouse for the Blind. EHC has their own podcast, and on the last day of camp, we were interviewed for one of their episodes! We’ll share a bit more about our camp experience in future posts but wanted to give you a taste of it here…

Listen to the Everything EHC Podcast Episode 32

(Check out more Everything EHC Podcast Episodes)