Part 2 of “Navigating Vision Loss in the Workplace”

(continued from “Navigating Vision Loss in the Workplace” (Part 1) – be sure to read this first!)

In keeping with a blog-length telling of this story I’ll skip the details of the obvious acceptance of the position, the additional HR paperwork and even my first work trip to Northern California (though that most surely will end up as a future post, as several noteworthy challenges presented themselves on the trip, including my Uber getting pulled over on account of me, a pleading conversation with a police officer and some guide dog conundrums)

I was, of course, excited by the flexibility of the new position and how many of the meetings would be done virtually. What I hadn’t accounted for, however, were the many pieces of technology I would need to familiarize myself with in order to conduct these meetings.

When I shadowed my first meeting and saw the experienced support coordinator sharing her computer screen and clicking from resource to resource using her mouse, seamlessly demonstrating extremely visual techniques and interventions, my first thought was “how will I EVER be able to confidently lead an interactive meeting like this?” I doubted my ability to even log in correctly, much less share the proper materials with parents. And my nerves turned to cold sweats when I held a practice meeting with one of my co-workers and mistakenly clicked on my text messages after hitting “share screen,” promptly lighting up my shared screen with all of my personal text messages.

“Um, maybe you don’t have to share your screen during meetings,” she offered. I could tell she was nervous for me.

“Ugh”, I laughed, mortified, “I’ll keep working on it before I do an actual meeting.” And I did. I practiced with my assistive tech trainer. I practiced with my husband. I practiced with imaginary meeting attendants. I came up with techniques to ensure nothing else even appear except the exact document I needed to share, closing every single item on my computer prior to practice meetings (which, if looking at my desktop on any given day, is A LOT of windows!).

Nonetheless, nervous adrenaline pulsed through my entire body as I logged into my first virtual 504 meeting.

The aspect I was most nervous about was how large I had to blow up the accommodations in order to see them well enough to read aloud because it meant that the parent would also have to read a super enlarged version that caused parts of the plan to disappear off the screen. I was also nervous I wouldn’t be able to find it on the desktop or that I would read it in a stammering way, as my fields of vision are so narrow that I really only see one word— and sometimes even one letter— at a time. I went over and over the accommodations in my mind beforehand so that I could paraphrase some of them and not have to read word for word. And when it came time to share my screen, I took my time even though I felt self-conscious about making everyone in the meeting wait in awkward silence as I focused on choosing the correct document. I zoomed in as much as possible, just to glance over a couple of the words, and then paraphrased each accommodation as the parent read along.

I have been leading these meetings for the past month, and I have moments where I think “holy cow, I’m doing it!” I’m sharing my screen, moving seamlessly through Google Docs, and using technology in ways that felt impossible a couple months ago.

And I’m allowing myself to celebrate those moments of success, something I really didn’t take the time to do in my early working years. I honestly don’t think I was even aware of the beautiful ways I developed to compensate for vision loss in the workplace in my 20s. I felt ashamed of doing things differently, of using non-visual techniques and of admitting that I needed accommodations. I didn’t like to admit that most tasks take me longer. It sometimes feels embarrassing to celebrate acquiring new skills that seem very simple to others. But I think it’s absolutely essential to acknowledge small victories, as they bring awareness to growth. When we don’t recognize growth, we can begin to feel like we are forever striving but never really getting anywhere because there is so much to learn.

To be continued next week..

Part 1 of “Navigating Vision Loss in the Workplace”

When the topic of vision loss in the workplace comes up, a discussion about suitable careers for people with vision loss typically ensues. These career options can sometimes feel limiting because we live in a very vision-centered society. Reflecting back on my past employment experiences, I have definitely not chosen visually easy ones.

This is not at all to pat myself on the back in the bravery department, as I honestly didn’t really think the visual challenges through until I was thick in the midst of them. I simply followed my interests, which is how I ended up as a foster care case manager at age 22, a position that required more driving than most UPS delivery employees. For a person without a driver’s license, that’s a bit of an issue, especially since it was before the days of Uber in a suburban setting where “mass transit” involved a fleet of soccer moms in mini vans. The position also involved transporting minors that were wards of the state, so I couldn’t exactly pick them up in taxicabs, though the cab fares probably wouldn’t have covered my social service salary anyhow. I had to get creative and ended up on trains (for the occasional urban trips), planes (for court-ordered, out-of-state sibling visits), and automobiles of individuals willing to be fingerprinted, including my generous husband!

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Photo description: Joy sitting on a chair, speaking to a group of children around her on the floor in a classroom.

Eventually, my interests and sanity needs led me to the classroom, which eliminated the transportation dilemmas but of course presented challenges of its own; as there are no training handbooks for managing a classroom of hormone-hyper 7th graders using non-visual techniques in an educational setting accustomed to visual methods such as hand raising. For someone with 4 degrees of peripheral vision, spotting a raised hand in a packed classroom is a bit like playing Yahtzee: there is a touch of skill involved but mostly a whole lot of luck. Of course, I created alternative management methods, such as assigning a class “caller” or giving students noisemakers in lieu of silent hands (in hindsight, not my brightest idea, but teachers in their 20s have to learn the hard way sometimes).

Fast forward to this past spring, when I was checking my e-mail before going to bed (a habit I’m trying to break) and saw a message that made me sit straight up in bed and elbow my husband. “Oh my gosh, babe, listen to this new internal job posting!” It was for a “student support coordinator” at the charter school where I was working part time. The position said it involved meeting with parents and teachers of struggling students in order to recommend interventions. But the part that most drew me to the position was that it involved creating 504 plan accommodations for students with various disabilities.

“Wow,” my husband elbowed me back, “that sounds perfect for you. You’ve been dealing with accommodations your whole life.” He was right, and as a general education classroom teacher, I always felt a certain connection to the students who had extra challenges, though I never wanted to be a special education teacher. I’ve always identified more with students who are completely capable of doing grade-level work when given the right accommodation because it’s so similar to my own story. I can perform just as well as any classmate or co-worker when accommodations are in place.

I began drafting a cover letter that very night (hence, the reason you should never check e-mails before bed unless you plan on staying up until midnight). I notified my current director, who wrote a recommendation letter, and started prepping for the interview.

Since the school is one of the largest charter schools in California with offices in various cities, and the Director for the Support Team was in Northern California, the interview was set up as a virtual video meeting in the videoconferencing app Zoom. I had to log into it in order to meet with a team of interviewers. The virtual interview setting brought some relief, as I didn’t have to worry about finding which chair to sit in, which person to look at or whether to bring my guide dog or cane, but some challenges arose for me as soon as the interview began. My internet signal was acting up, so my voice was cutting in and out. The director suggested I call in while still keeping my screen on in order to see the documents they were sharing. My heart immediately began to race as I attempted to dial in while everyone waited. Fortunately, I had done a “practice” Zoom session with my assistive tech guy, and he had shown me how the one-tap iPhone number automatically entered the access code for me, so I didn’t have to worry about fumbling with entering a code. Simultaneously, my mind raced over whether I’d be able to see the documents they were sharing with me. I had mentioned my visual impairment in my cover letter, but wasn’t sure who had read the it and couldn’t find my words to bring it into the conversation. (Looking back, the shared screen documents seem like an obvious segue.)

Even though I’ve written posts and published articles on the benefits of hiring people with disabilities, old stories of inadequacy and blind shame surface at the most inconvenient times.

The team gave me several scenarios, which they both read aloud and put up on the screen I tried zooming my screen in but still could not read the scenarios very well, so I tried to just focus on their words even though my brain felt engulfed with fog. I took very long pauses and admitted that I didn’t even know what tier 1 and 2 interventions were! The only question I felt completely confident and articulate answering was the difference between modifications and accommodations.

My stomach muscles knotted up as I realized I was majorly stammering through my answers, talking in circles. Was I making any sense at all?

I felt relief when the interview ended but immense disappointment over how it had gone.

So I was completely shocked the next morning when I received an e-mail from the director, saying she’d like to talk about the position in more detail. It turns out that the interview team liked that I had some background in social work in addition to education. This is a very involved position,” she said, “it’s full time, and there’s a lot to it.” She suggested I take the weekend to think about it and consider the impact on my current obligations.

Had I just been offered the job?!

I mulled it over for about 5 seconds before deciding it was for me. I didn’t overthink the visual challenges that surely were ahead.

To be continued…

 

Just Keep Tossing The Salad: Blind Survival Skills in a Bustling Holiday Kitchen

I come from a large extended family. I am one of 4 children and my mom is the oldest of 9, so warm bodies have never been sparse on the holidays, even after half the fam moved to the Northwest. And my husband’s family, though initially smaller, has grown exponentially the past few years, both with new littles and adopted extended members, so no shortage there either. I also come from families of doers and helpers on both sides— everyone pitches in by bringing a dish to pass, assists with food prep before the meal and form s a cleaning assembly line of sorts afterwards. Continue reading “Just Keep Tossing The Salad: Blind Survival Skills in a Bustling Holiday Kitchen”

How Hiring a Qualified Person with a Disability Serves Everyone

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OCTOBER IS NATIONAL DISABILITY EMPLOYMENT MONTH (NDEAM). HERE’S WHAT EVERYONE SHOULD KNOW ABOUT THE VALUE DIFFERENTLY ABLED PEOPLE BRING TO THE WORKPLACE.

I recently returned to the field of education after an eight-year stay-at-home-mom hiatus. In addition to the typical reentry jitters and pondering over whether my favorite coral blazer is still in style, some more significant questions surfaced as I signed my contract: How will I travel to trainings and meetings after the closest bus routes to my house were just cut? What if one of my students or parents is allergic to my guide dog? And how many sessions with my accessibility specialist will it take for me to confidently use all the technology required to do my job?

As a person who is legally blind, these are legitimate questions to ask, but they’re also relatively straightforward to solve, especially when compared to the invisible barriers people with disabilities face.

The concerns that kept me awake the nights preceding my first day of new-teacher training were far more nuanced than transportation hiccups. My mind darted anxiously from cultural stigma to past experiences to potential perceptions, but it ultimately landed on this one question: At this organization, will I be valued for what I can bring or overlooked for what I lack?

As an educator with significant sight loss, I’ve had several work-related situations cause me to pause and wonder how to proceed.

In my early 20s, after my very first teaching job interview, the principal said the reason he wasn’t hiring me was that my eyes sometimes drifted to the sides instead of looking right at him. I later found out my student-teaching supervisor had called him to say how well I’d done with the eighth graders, explaining that my vision loss didn’t affect my ability to teach. She told him about the system I’d developed for calling on students though I couldn’t see their raised hands, and how I was so in tune with my three language arts classes that I made each of my 90 students an individualized certificate listing their unique gifts at the end of my 16 weeks with them. The principal still chose not to hire me. Neither did the principal at the school where I student taught. Fortunately, a principal in a nearby town was able to look past my disability and hired me to teach seventh grade language arts.

Yet consistent positive reviews in my first few years of teaching failed to shield me from others’ doubts. One behavioral specialist didn’t want to place her student in my classroom because she was afraid I wouldn’t keep a close enough “eye on him,” despite that he had an aide who would be there most days. While the student participated well in my class overall, I began to sense that his aide was focused on scrutinizing my ability to do my job rather than on helping this student. Thankfully this was not the sentiment of all my coworkers. I felt supported and valued as a team player by most. But an undercurrent of dissent can poison a sea of supporters when you’re feeling watched and pressured to prove yourself.

Fast-forward to last spring when I began applying for jobs after my mommy-hiatus: I was surprised to find that an element of discrimination still exists, at least in the hiring processes of several places in Southern California. The director of a local academy, for example, asked me how I was able to teach with my limited sight. I felt my throat tighten at the bluntness of her inquiry and tried to maintain focus as her hiring assistant sat next to her, sighing heavily throughout the interview, stating at the end of our conversation, “I really doubt we have a place for you here.” I debated not bringing my cane or guide dog into my next interview but worried I would appear intoxicated if I fumbled to sit down.

Thinking I’d have a better chance gaining employment at a local institute for the blind and visually impaired, I applied for a position as an instructor after noting that I met all the position’s qualifications. In my cover letter, I highlighted my active involvement within the blind and visually impaired community and how I have mentored others experiencing vision loss. I was disappointed when I didn’t get an interview or any written response at all, after multiple attempts to follow up on my application. When I expressed this to a friend who is blind and volunteers at the institute, she told me, “Oh, you shouldn’t have said you’re visually impaired in the cover letter. They don’t really hire people with low vision very often. Mostly just as volunteers but rarely as paid teachers.”

Right about now, anyone versed in disability law is raising a hand to comment, ready to point out that a seemingly small action, like asking someone directly about their disability during a job interview, is illegal and could even be grounds for a court case. I do realize this, but sitting in a courtroom just doesn’t seem like the best use of my time and energy. This is not to say others shouldn’t involve legal action in certain cases of work-related discrimination. I have friends who’ve had to fight to keep their jobs after losing vision, and I wholeheartedly support their efforts.

According to recent statistics, 17.5% of people with disabilities were employed in 2015, compared to 65% employment among persons without disabilities. I am convinced that at least a portion of those remaining 82.5% desire to work but are unable to cross barriers into the workplace.

As I continued my own job search, I remembered an interaction I had at an Apple store in Chicago a couple of years ago. I was asking about voiceover on my iPhone, and the technician became stumped over a couple of my questions. He apologized and said he’d check with his coworker, an expert in voiceover who used it all the time. “He’s blind and teaches all of us new tricks on voiceover,” he added. His statement gave me a sense of pride for some reason, like the technician without sight wasn’t some employee who everyone had to help but someone who brought unique, needed expertise. Simply hearing about this employee reminded me that I, too, have unique expertise to offer.

Being a credentialed teacher, not a techy, I knew finding a cutting-edge school would be more difficult than finding a trending tech company. Yet the explosion of new charter schools in California offered a large pond from which to fish, one that ultimately led me to my current position with an innovative charter school.

Since those in leadership typically set both the tone and precedent for interactions among coworkers, I was immediately impressed by how my director conversed with me about my needs. She offered her assistance and support if needed but didn’t hover or seem concerned. Not once has she asked me how I’ll keep up with paperwork, travel to meetings or learn the detailed technology component of my position. Not once has she asked me how I’ll do my job. She hasn’t asked me because she’s focused on something far more important than my disability: what I can bring to her team.

While it requires openness, hiring someone with a disability is hardly an act of charity. Yes, incorporating someone who is differently abled often entails accommodations, extra meetings or time in training for both the new hire and others within the organization. There are potential risks and real barriers, but there are also real benefits.

People with disabilities are accustomed to finding alternative solutions to difficult questions, because troubleshooting is part of our daily lives. There are strengths I bring to my position because of, not in spite of, my vision loss. I relate with students who are struggling in a way that others may not, and I will not cease searching for the unique ways students show their intelligence, not just the traditional ones our education system deems important.

When an organization offers someone the opportunity to bring their talents, skills and knowledge to the table, they will absolutely show up and thrive. Giving a differently abled person the chance to excel in what they are skilled at not only allows that individual to succeed, but it also promotes a culture of perseverance among everyone. When I watch my students progress in their learning journey despite challenges, I feel motivated to move forward in my own educational discoveries. And when an organization hires and values qualified employees who are differently abled, the organization sends a resounding message to its team and to the public: “Here, we care about what each employee uniquely brings.” Or, as stated simply in the words of my favorite poet, Maya Angelou: “In diversity there is beauty and there is strength.”

 

Acquired Savant Syndrome: Meet an Accidental Genius

(Repost from article by Joy Thomas from Crixeo Magazine)

AN ACCIDENT UNLOCKED JASON PADGETT’S MATHEMATICAL AND ARTISTIC POTENTIAL, MAKING HIM ONE OF ONLY 40 PEOPLE IN THE WORLD WITH ACQUIRED SAVANT SYNDROME.

Jason Padgett, who has acquired savant syndrome, says he wouldn’t change any of the pain he underwent after being beaten, as he now sees the world in an overlay of geometric fractals that he believes hold answers to some of life’s biggest questions.

With the popularity of shows like The OA, The 4400 and Second Chance, questions about the human brain’s hidden abilities surface, leaving many of us to wonder what price we’d pay to unlock hidden neurological gems. Though these shows are fictional, the brain science behind some of them is not. And there are real-life people to prove it.

Read more…

https://www.crixeo.com/savant-syndrome/

Service Animals: A ‘Chosen’ Career Path or a Life of Servitude?

(Repost of article by Joy Thomas from Crixeo Magazine)

MANY PEOPLE SEE THE RELATIONSHIP BETWEEN SERVICE DOG AND HANDLER AS A BEAUTIFUL, SYMBIOTIC BOND, BUT SOME ANIMAL RIGHTS ACTIVISTS VIEW IT AS HARMFUL. ARE SERVICE ANIMALS ‘HAPPY’ WORKING? WE ASKED THE EXPERTS.

Amanda Bagwell-Chase, a self-proclaimed animal rights activist, proudly wears a T-shirt displaying a lion’s paw print next to a human handprint, referring to Cecil the Lion and symbolizing unity between animals and humans. But on several occasions Bagwell-Chase has been the target of public ridicule while wearing this shirt. The reason? She wears it while holding the harness of her service dog, Patsy.

Read more…

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7 Lessons Learned on a Paddle Board

20247589_1900845293573972_6553534300030194330_oLesson #1:  Paddle boarding visually impaired is the perfect illustration to describe the continuum of blindness that confuses the public (i.e. for people who are perplexed when they see someone with a guide dog or cane reading a text message with their eyes).  

Navigating around Newport Harbor today reminded me of my favorite quote about my eye disease, Retinitis Pigments. ”RP is seeing a tiny piece of paper across the room and then tripping over an elephant on the way to pick it up.” I paddled hard to the right in order to avoid a small buoy, feeling extremely proud of myself for spotting the bobbing mound of plastic, only to ram the tip of my board directly into a giant boat, which seemed to literally appear out of nowhere, though it rocked there gently all along. That’s RP, my friends: the person standing silently by the elevator, unbeknownst to you, who suddenly says “hi”, startling you to a halt. The trickery of RP is that you see many things. And then you don’t. You think you’re gliding along just fine. And then you crash. You see just enough for your mind to convince you that you’re seeing the whole picture. But you’re not.

The mobility help of a guide dog or cane might seem confusing or unnecessary to some. But it isn’t. Mobility aides keep second-guessing to a minimum and prevent run-ins with mute elephants and strangers near elevators who come out of nowhere (and perhaps with silent sea vessels if they were useful in water). #blindpaddleboarding #guidedogsfortheblind

Continue reading “7 Lessons Learned on a Paddle Board”

9 Reasons I Love Driving My VI Daughters (and grandkids!) Places (guest post by Judy Derpack)

My mom sent me this list, and I read it on a day I really needed a different perspective.  After my kids’ ride to their theater rehearsal cancelled, it was too late to call an Uber, so I had to quickly ask a neighbor to drive them.  She was in the middle of cooking dinner for her family and seemed stressed by my request, and since inconveniencing people is always a fear, I felt like a complete burden.  If it hadn’t been one of their last practices before their big show, I would have just had them skip it in order to avoid having to ask.  Even when people tell me they are happy to be helping me out, I still feel like I’m imposing on their day.  Reading my mom’s perspective helped me to see that there are some benefits for the driver, or at least my generous mom chooses to see the benefits!  Even though I live too far from her to regularly enjoy the benefits of riding with her (lucky duck, Jenelle!), I am grateful to know all of the many reasons she considers her chauffeuring days a gift.  Thanks mom!  

Visual Description: Joy and Jenelle with their mother, Judy, decked out in snow gear with a snowy background.
Visual Description: Joy and Jenelle with their mother, Judy, decked out in snow gear with a snowy background.
  1. Quality time talking, planning family events and attempting to solve the world’s problems.
  2. Someone to share an “adventure” with.  My family knows my motto is “life is an adventure” (which I say every time I get lost driving somewhere).
  3. More chances to see my grandchildren.
  4. Better price shopping because two heads are better than one.
  5. I swear less at rude drivers.
  6. I get to research good parks to play at.
  7. It provides an opportunity for my old brain to practice multi-tasking.
  8. It reminds me to clean my car more often.
  9. It keeps me from taking the gift of driving for granted; I am very grateful. In a few years, I’m sure I will need someone to start “driving Miss Judy”.

Roja Reports: Halloween, Homeschooling and Heresy

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Visual Description: Joy and Roja with Joy’s husband and two daughters against a red curtain backdrop at Guide Dogs for The Blind Canine Heroes Wine Auction

It’s been awhile, I know.  Joy just keeps me hoppin’. Salt Lake. Portland. Leavenworth. San Fran. Most of those places had guide dog friends for me, though, so I’m not complaining.

Of course, on each of these trips, Joy planned a million things.  She even tried to get me on a giant bicycle in Golden Gate Park that she called a surrey.  It was terrifying!  Thank goodness her husband talked some sense into her.  i’ve always liked that guy, partly because he’s hairy like me, but mostly because he has common sense:  you don’t fit a 60 lb dog on skinny bicycle seats..

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Visual Description: Joy embracing a frighted Roja while her girls look onward on a 4 seat Surrey bicycle.

Continue reading “Roja Reports: Halloween, Homeschooling and Heresy”

Guest Post: Performing in Blindface

recent Salt Lake City gathering.

Continue reading “Guest Post: Performing in Blindface”