I’m so excited to introduce you to our friend, Jen.  She has been reading our blog for awhile now, and we’ve been chatting about our lives as young moms with RP for a couple years.  We are also part of the same online community of visually impaired women on Facebook, called Room With a View, and Jen is always posting the most thought-provoking questions, like the one she shares here today. It’s one I wish I’d read back when I was teaching and constantly afraid I’d lose my job because of my vision.  I know Jen’s post will be an encouragement for many out there in the workplace!   Continue reading

View and share “DoubleVisionBlog Fight Song” Video on Facebook

Hi DoubleVisionBlog friends! I’ve been secretly working on this video for the past month as a surprise for Jenelle. Happy Blindness Awareness Month!

——

In honor of Blindness Awareness month this October, Joy shares her journey of shame, vulnerability and courage. With both humor and insight, Joy and her twin sister, Jenelle, share their stories of life with RP at doublevisionblog.com. Continue reading

My Aunt Debbie came over the other day and gave my girls the best present, a picture book entitled, What Does it Mean to Be Present?. It’s a beautiful book in a whimsical font on a topic that I haven’t seen many children’s books tackle. Lots of books on friendship and sharing and learning. But not many on “being”.

61efqzU9gpL._SY436_BO1,204,203,200_

My daughters love this book, although I’m the one who can’t stop flipping through it, hoping it will rub off on me. My mind being the hamster wheel that it is, I really struggle with being fully present. Continue reading

The following is a parody of my favorite Dr. Seuss book, describing my hesitancy to use my cane, before trying it but then my relieved delight when I realize it’s actually pretty helpful to have around!

I do not like white cane in hand.  I do not like it, Joy I am!

Would you use it at a park?

Could you use it in the dark?

I could not, would not at a park.

I could not, would not, in the dark. I do not like white cane in hand. I do not like it, Joy I am!

IMG_1290

Continue reading

This slideshow requires JavaScript.

Growing up, we were the best of friends.

Joy: Except for that time, in utero, when she sat on my head for nine months, and then made me wait four laborious minutes while she made her grand entrance into the world.

Jenelle: Or that time when we were 18 months old and she sunk her teeth into my arm after I stole her stuffed bunny.

Joy: Or that time when we were eight, and she poured a glass of milk over my head at the dinner table.

Jenelle: Or that time when we were nine, and she signed my dad’s Father’s Day card, “Love, Joy. p.s. not stinky Jenelle.”

Joy: Or all those times as teenagers when she chased me around the house trying to whip me with a wet bath towel, while I ran away, chanting “Violent lady! Violent lady!” Continue reading

“““FullSizeRender

It was a typical night at the movies, except for one thing..

I could “see” the endearing Paddington Bear, with all of his slapstick British humor, thanks to audio descriptions at a nearby theater.

Audio Description is commentary and narration which guides the listener through the movie or play with concise, objective descriptions of new scenes, settings, costumes, body language, and “sight gags,” all slipped in between portions of dialogue or songs. Continue reading

In honor of blindness awareness month this October, I decided to finish this post!  I drafted it this summer and then abandoned it because I found it difficult to write.  For me, it’s like trying to describe my favorite type of movie– I can’t put the exact description into words but I know it when I see it.  And if I think about it enough, I can find words, but it does take some thought.  I don’t like to be cynical, but it would have been easier to come up with a list of 15 ways NOT to help people with RP!  I decided to take the more positive approach, although I couldn’t resist throwing in some of my personal pet peeves. Continue reading

 According to many surveys, going blind is something people fear most, right behind cancer.  I’ve written plenty of posts related to fear and grief and challenges.  But I’ve seldom touched on all the fringe benefits of blindness.
Some readers may think I’m joking, but honestly there are parts of my life that have turned out to be pretty great because of low vision.  So I put together these top 10 reasons blind people lead the best lives: Continue reading

One of the things I love about writing is that it helps me organize and connect the many thoughts, facts, emotions and analysis scurrying around in my head.  Basically, it helps me make sense of the world as I’m experiencing it.

Sometimes these connections happen while I’m working on an essay, but other times they solidify after I’ve already posted, often through follow-up conversations and comments people post.

There were definitely some reactions from friends and readers regardling my last post on my recent travels.   Through these conversations, I came to some realizations.    Continue reading