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Growing up, we were the best of friends.

Joy: Except for that time, in utero, when she sat on my head for nine months, and then made me wait four laborious minutes while she made her grand entrance into the world.

Jenelle: Or that time when we were 18 months old and she sunk her teeth into my arm after I stole her stuffed bunny.

Joy: Or that time when we were eight, and she poured a glass of milk over my head at the dinner table.

Jenelle: Or that time when we were nine, and she signed my dad’s Father’s Day card, “Love, Joy. p.s. not stinky Jenelle.”

Joy: Or all those times as teenagers when she chased me around the house trying to whip me with a wet bath towel, while I ran away, chanting “Violent lady! Violent lady!” Continue reading

 According to many surveys, going blind is something people fear most, right behind cancer.  I’ve written plenty of posts related to fear and grief and challenges.  But I’ve seldom touched on all the fringe benefits of blindness.
Some readers may think I’m joking, but honestly there are parts of my life that have turned out to be pretty great because of low vision.  So I put together these top 10 reasons blind people lead the best lives: Continue reading

Posted by Joy and Jenelle

Sometimes we laugh about it, sometimes we cry about it, sometimes we share news and medical articles about it, sometimes we avoid talking about it altogether, but it’s always there.  We’re identical twin sisters who have grown up with RP.  We’re now 33 years-old, both married to amazing guys, and have sweet little daughters.  Although we look a lot alike on the outside and share the same challenges of vision loss, we often have different perspectives on the disease and each deal with it in our own way.  We wanted to create a blog mainly for other people struggling with RP, as we find it helps to feel connected when facing the day-to-day challenges of living with RP.

We also hope that it can give family and friends of people with RP, Ushers, and other similar diseases a glimpse of what it’s like to live with these types of challenges.  And frankly, this is therapeutic for us, so even if no one (besides our mom) reads it, we’re gonna write it anyways!