(repost from an article Joy just had published at crixeo.com)
OCTOBER IS NATIONAL DISABILITY EMPLOYMENT MONTH (NDEAM). HERE’S WHAT EVERYONE SHOULD KNOW ABOUT THE VALUE DIFFERENTLY ABLED PEOPLE BRING TO THE WORKPLACE.
I recently returned to the field of education after an eight-year stay-at-home-mom hiatus. In addition to the typical reentry jitters and pondering over whether my favorite coral blazer is still in style, some more significant questions surfaced as I signed my contract: How will I travel to trainings and meetings after the closest bus routes to my house were just cut? What if one of my students or parents is allergic to my guide dog? And how many sessions with my accessibility specialist will it take for me to confidently use all the technology required to do my job?
As a person who is legally blind, these are legitimate questions to ask, but they’re also relatively straightforward to solve, especially when compared to the invisible barriers people with disabilities face…
Growing up, we were the best of friends.
Joy: Except for that time, in utero, when she sat on my head for nine months, and then made me wait four laborious minutes while she made her grand entrance into the world.
Jenelle: Or that time when we were 18 months old and she sunk her teeth into my arm after I stole her stuffed bunny.
Joy: Or that time when we were eight, and she poured a glass of milk over my head at the dinner table.
Jenelle: Or that time when we were nine, and she signed my dad’s Father’s Day card, “Love, Joy. p.s. not stinky Jenelle.”
Joy: Or all those times as teenagers when she chased me around the house trying to whip me with a wet bath towel, while I ran away, chanting “Violent lady! Violent lady!” Continue reading
According to many surveys, going blind is something people fear most, right behind cancer. I’ve written plenty of posts related to fear and grief and challenges. But I’ve seldom touched on all the fringe benefits of blindness.
Some readers may think I’m joking, but honestly there are parts of my life that have turned out to be pretty great because of low vision. So I put together these top 10 reasons blind people lead the best lives: Continue reading
Posted by Joy and Jenelle
Sometimes we laugh about it, sometimes we cry about it, sometimes we share news and medical articles about it, sometimes we avoid talking about it altogether, but it’s always there. We’re identical twin sisters who have grown up with RP. We’re now 33 years-old, both married to amazing guys, and have sweet little daughters. Although we look a lot alike on the outside and share the same challenges of vision loss, we often have different perspectives on the disease and each deal with it in our own way. We wanted to create a blog mainly for other people struggling with RP, as we find it helps to feel connected when facing the day-to-day challenges of living with RP.
We also hope that it can give family and friends of people with RP, Ushers, and other similar diseases a glimpse of what it’s like to live with these types of challenges. And frankly, this is therapeutic for us, so even if no one (besides our mom) reads it, we’re gonna write it anyways!