True Fashion

I’ve always loved fashion, and I always will.  From trendy mishaps like the Blossom-inspired hats of my tween years, to the time I co-owned and operated Mapel Boutique, fashion has been an important part of my life.  But as my vision continues to deteriorate, I’ve often wondered how my relationship with fashion will be affected.  Can people still love fashion without sight? After chatting with fashion diva, Joy Ross, I know the answer is absolutely positively YES.  Not only is Joy Ross adorable, but she embodies everything I love about fashion – a strong sense of self expression and effortless style.

“Fashion is not something that exists in dresses only. Fashion is in the sky, in the street, fashion has to do with ideas, the way we live, what is happening.” Coco Chanel Continue reading “True Fashion”

Book Review: For The Benefit of Those Who See

It was a bleak Seattle winter morning several years ago, and I shivered as I climbed into the yellow taxi cab.  I was dreading my appointment at the WA Department of Services for the Blind (DSB) for many reasons, but I had finally decided to see what kind of services might be helpful to me.  They had sent me a voucher for the taxi ride, so that transportation to DSB would be direct and free.

I handed the voucher to the cab driver, and noticed him eyeing me suspiciously in the rear view mirror.  I glanced down at the time on my phone to make sure I would be to my appointment on time.  When I looked back up, I saw that he was once again glancing at me in the rear view mirror.

I instructed myself to stop being paranoid, and focused on checking Facebook updates on my phone for the remainder of the ride.  As the driver pulled into the DSB parking lot, he asked in a thick Indian accent, “So, are you blind?”

I wasn’t expecting his question, so I paused briefly before saying, “Um…yes, I have a rare eye disease that is causing me to lose my sight.”

He did not say anything back to me, but shook his head from side to side, and made a “tisk, tisk tisk” sound, like he was tapping his tongue on the roof of his mouth.  I instantly felt my face flush with embarrassment.  I wasn’t sure if he was pitying me or shaming me.  I was relieved to step out of the taxi and out of the driver’s seemingly judgmental presence.  I didn’t give the incident further thought until recently when I read For the Benefit of Those Who See: Dispatches from the World of the Blind. Continue reading “Book Review: For The Benefit of Those Who See”

5 Signs the Guide Dog Lifestyle is Taking Over Your Life

 
1. You hear yourself telling your 5-year-old to “Hop up!” when she is lagging behind.

2. While doing sighted guide with your spouse you find yourself patting him on the arm at every corner, saying “Good boy!” 

3. You open your wallet and, instead of cash, find kibble.

4. When you pick up your cane you instinctively give it a “forward” command.

5. You tell your friends you are going to “do your business” as you head to the lavatory.  

Will the Real Blind Person Look at Me? (guest post)

I met Amy via an online Retinitis Pigmentosa support group, and we instantly connected.  Reading this post, I think you’ll see why!  She writes an awesome blog and has a memoir that I’m looking forward to reading.  This is one of my favorite posts because it discusses the spectrum of blindness and how many people with vision loss do not appear so.

 

By Amy L. Bovaird

Real-Blind-Person-1024x1024Look at the picture. Who would you guess the blind one is?

You might think it’s the second photo because there is a little part of a cane sticking up. The truth is … each one of us in the photo is blind.

Blindness can’t be measured on a set of scales with a needle, one pointing to BLIND and the other SIGHTED. Yet, it’s often believed that it’s like that. Either you can see or you can’t. So when onlookers see an individual using a white cane, many times the thought that accompanies it is, “that person can’t see anything.”

But then the same blind person looks at a watch, checks messages on a cell phone, looks both ways when crossing the street, makes eye contact with the onlooker, orders off a table menu, walks around a number of barriers while dragging the cane behind, or simply smiles at him or herself in a mirror.

You can see! You’re faking it. You just want attention. You must want a free bus pass. You’re playing tricks. Snea-ky!  Hey, look this way. And the most famous response is … But you don’t LOOK blind!

People have often voiced these thoughts aloud to me – much later, of course when they can laugh at their misconceptions. Sometimes strangers even voice these thoughts out loud. While it might seem strange, some vision-impaired people may unconsciously follow these same fallacies. I don’t look blind. AM I faking it? Are people going to think I am? I struggled with it certainly. That’s one reason it is so hard to pick up a cane and use it.

Those who are not familiar with blindness often have a certain idea in their minds of what a blind person looks like. When I ask them what that is, their response might be, “Someone with thick glasses.”  The answers vary; sometimes silence follows.

The truth is, you can’t tell if someone is blind by looking.

I’ve had people try to “catch” me by snapping their fingers quickly to see if I notice the movement. It’s equivalent to “Look at me! Gotcha!”

I wonder why people want to catch us. What’s in it for them?

When I trained in Orientation and Mobility, I learned that “blindness” encompasses a whole continuum of varying degrees of sight to no sight. A lot of people are visually-impaired and no one even knows their struggle because they have enough vision to get around without a cane or a guide dog. But the struggle is real.

Yes, some people can make eye contact. Some can’t.

Some can look you straight in the eye one moment then turn around and spill a large glass of water the next. There’s a gap in their peripheral, or side, vision. Some can see where you’re standing, but not your hands. So you go to shake a hand and the person stands there unaware. “What a snob,” the thought is. Another gap.

In Erie, Pennsylvania, where I live, there are about 290,000 citizens. 15 % of those people are legally blind. That means there are about 43,500 people who cannot see what a typical person should be able to see. That’s a lot of people!

I never minded people thinking I was clumsy or air-headed. It was an easy blame. It was much harder to admit I couldn’t see. Maybe you know someone who is having some struggles. Maybe it’s his or her vision. Be kind. And if you see someone with a cane, don’t “test” them. Don’t “wonder.” It’s hard to pick up a cane, believe me.  If I wanted attention or a free bus pass, I could solve that in other ways.

Today’s truth: blindness is a continuum with a large span between legally blind and completely blind. There is no one look to being blind. – you can tweet this.

Do you know anyone who is visually-impaired or blind? If you could ask them one question about their vision, what would it be?

Amy3-4Bio

Amy Bovaird is an educator, an inspirational speaker and author of the bestselling memoir, Mobility Matters: Stepping Out in Faith. Although Amy suffers from a dual —progressive vision and hearing loss—she continues to enjoy running, hiking and traveling. She also supports local and national animal rescue organizations. Amy blogs about international travel and the challenges she faces as she loses more vision and hearing. But more importantly, she shares the lessons God reveals to her through her difficulties. You can read about her experiences at http://amybovaird.com
Other ways to connect with Amy:

Facebook page

Author Facebook page

Amazon kindle, paperback and Large Print

Signed copy of book

Audio sample (book coming soon!)

Wizard of What?

12088410_10153420785634807_534558882 8923495488_n
Yellow lab, Roja, wearing a furry lion’s mane.
12191911_1513974458927726_4283950748883955282_n
Husband Ben dressed as Scarecrow, Joy in tin woman costume with guide dog Roja, dressed as cowardly lion, standing next to Elli, age 5, dressed as Glinda, and Lucy, age 9, as Dorothy.
So I was just starting to really like this Joy person.  Sure, she’s a bit chatty and won’t stop commanding that phone of hers to do different things, but she plays tug-of-war like a real champ and even lets me win sometimes.  And her kids are awesome…they let me snuggle with them as they fall asleep, and whenever Joy says it’s time to get them from school, I race to the front door to put my harness on!  But Halloween really made me question the entire Thomas family, even Joy’s chill hipster husband with the big beard.

They put this furry lion’s mane on me, and as if that weren’t embarrassing enough, they added this badge labeled “courage.” Then they all got in weird costumes too.  After getting all gussied up, they took me to this dog parade where there were tons of dogs and treats, but they had the nerve to expect me not to sniff around!  I figured it was payback time for the mane, so I barely listened to a word they said.  I’ll teach Joy not to pawn her strange human traditions off on me!  I’m a serious working dog, after all.  I can’t be bothered with this hullabaloo.

I saw Joy pack up all the costumes yesterday, though, so I’m thinking this was just a one time thing.  I’ll let it slide this time, especially since she took me to Chicago yesterday to hang out with some fellow working dogs.  I got to see Anja, who I used to play with when I lived in California.  We pawed each other like we were small pups and then snuggled next to each other in our harnesses on the floor of some taco joint they took us to.   I also got to meet a new friend named Cabrillo, and he was super friendly.

All in all, I still think Joy is a decent handler, so I think I’ll keep working for her.  Plus, she just got these new lamb treats that I really can’t pass up.  You should see the drool that hangs from my mouth when I catch a glimpse of these things!

FullSizeRender 6
Jane, Joy and Pam, with guide dogs Anja, Roja and Cabrillo.

Why We Hide

BAM! Blindness Awareness Month is coming to a close, and we have a hot topic to discuss.  

Joy and I used to think we were the only ones who tried to keep our vision loss a secret growing up and even into adulthood.  Then we started this blog, and we heard from so many people with similar stories of trying to hide the fact that they couldn’t see.  And then we read Not Fade Away and Now I See You, and discovered still more stories of cover-ups, secrecy, and shame over vision loss.  

While it was comforting to learn that we were not alone in choosing to hide our vision loss, it also made us wonder…How many people have tried to hide their low vision at some point in their lives? And why?

Just to be clear, we’re not condoning hiding vision loss, nor are we condemning it.  We’re exploring the reasons behind it.   Continue reading “Why We Hide”

Who Let the Dog Out?

Hi there!  Joy is finally letting me, Roja the guide dog, speak for myself!  Joy brought me to school for the first time last week, twice!  Last Thursday, I showed off my skills in Mrs. Cardiff’s class at Nicholson Elementary in Montgomery, IL, and I’d like to give a special shout-out to those 3rd graders because they were awesome!  Every time Joy asked a question, those kids’ hands went up, and after they answered, Joy let them pet me!  And some of them even got to feed me a treat!  I sat there with my harness on, acting all calm and chill, but inside I was like “WOO HOO!  SCHOOL ROCKS! I LOVE KIDS AND TREATS AND DROOLING!!!”  Don’t worry, though, I totally played cool, and besides a bit of drool, I’m pretty sure I convinced those kids that I’m the most gentle, obedient dog ever!

Then the next day, I got to go to my very own family member, Lucy’s, 4th grade class in Naperville, IL.  Her teacher, Mrs. Fawell, was so nice, and the kids huddled around me, asking all sorts of interesting questions about me.  I just got to sit and enjoy the attention, as shown in the picture below.  Joy did most of the talking…boy can she yap…blah blah blah blah blah…but I got to show off my guide dog work when the kids made an aisle for me to guide Joy down, complete with a chair obstacle and all!  I’m not trying to brag, but I was pretty much the bomb-diggity guide dog of the year, and those kids loved me!  They stared at me and petted me and applauded for me.  But don’t worry — again, I played the cool card and didn’t get all crazy, even when Joy took off my harness and played tug with me.  I did wag my tail, but that was only because I wanted all the kids to know I was happy to meet them!  Thanks, children!  I can’t wait for my next adventure!
FullSizeRender 5

You Might Have Low Vision IF…(guest post by Lori Linna)

BAM! If there’s one thing Joy and I LOVE to do, it’s LAUGH.  Sometimes we need reminders not to take ourselves too seriously, and that’s why we love this post by Lori Linna! 

Wow, what an honor it is to be invited to post here in Doublevisionblog. My name is Lori Linna, I live in Wisconsin with my husband, two children and a crazy dog. The following is very similar to a post I did elsewhere and was asked to share it in honor of Blindness Awareness Month.  For the record, I have RP as well as a hearing loss.

Stand-up comedian Jeff Foxworthy is known for his redneck jokes. One of my favorites goes something like this, “If your lawn furniture is also your living room furniture, you might be a redneck. “

It occurred to me a similar comedy routine could be used for those of us who have poor eyesight. While being blind is not funny, some of the situations we find ourselves in are easier to tolerate if we can find some humor in them. For the purpose of today’s post, I will use the term ‘low vision’ in place of the word redneck.

Envision yours truly holding a white cane and wearing dark sunglasses while standing up on a small stage with a microphone. I may or may not be facing the audience but that’s fine, just play along, okay? Continue reading “You Might Have Low Vision IF…(guest post by Lori Linna)”

Talk Radio

BAM! I enjoyed talking to local radio host Clint Strand about Blindness Awareness Month on KOHO Radio today. I was quite nervous about sharing my story with my local community.

After it aired, I received the best text from my friend Rebecca. “You sound great and assertive and approachable and kinda sexy.” The sexy part was likely due to a scratchy throat, but it made me laugh and I appreciated the encouragement!

If you missed the interview on the radio today, here it is! LISTEN TO JENELLE’S INTERVIEW