July marks 4 years of doublevisionblog. If you’re new to this blog, or have missed some posts over the years, here’s our “must read” list. Continue reading “Our Favorites”
Tag: retinitis pigmentosa
Live the Life You Want: Advice for Parenting Children Who Are Blind or Visually Impaired Tip #8
Tip #8: Live Your Life and Allow Your Child to do the Same
With July upon us, I couldn’t resist squeezing this final tip into the series!
All of our tips are meant to be incorporated into your vibrant, rich lives. They are not meant to be at the forefront of your mind or schedule at all times. Focus on the approach you’d like to take and the advice that seems to make sense for your child, integrate it into your lives, and then move forward.
Seek Out Mentors: Advice for Parenting Children Who Are Blind or Visually Impaired Tip #7
Tip #7: Seek Out Mentors
My very first mentor was an attorney from Utah. Mormon. Married, with children and grandchildren.
I was a 24-year-old teacher from the Midwest, entering a Master’s program, newly married and just on the cusp of adult life.
Providing Age-Appropriate Opportunities: Advice for Parenting Children Who Are Blind or Visually Impaired Tip #6
Tip #6: Give Your Child Age Appropriate Opportunities for Exploration
I’ve always loved magazine quizzes – anything from “take this quiz to find out if he really likes you” as a pre-teen to “learn which decorating style suits your home” in my housekeeping magazines. When I was trying to think of an interesting way to present this week’s tip, I decided to design my own little quiz. If quizzes make you nervous, calm down. This is a self-graded quiz in which there are no “right” answers. These questions are designed to help you constructively evaluate the boundaries you set for your child. I tried to incorporate different age scenarios, so that there is something that applies to everyone’s current stage. Continue reading “Providing Age-Appropriate Opportunities: Advice for Parenting Children Who Are Blind or Visually Impaired Tip #6”
How to Talk About Blindness: Advice for Parenting Children Who Are Blind or Visually Impaired Tip #5
Tip #5: Talk About Blindness in Positive Ways in Everyday Conversation
Your child’s blindness doesn’t have to be the elephant in the room, even if your child struggles to talk about it. I think it’s possible to help normalize a tough topic when you find ways to bring it into casual conversation. While you don’t want your child’s eyes to be the thing you’re constantly talking about and obsessing over, you also don’t want it to be the thing you never bring up.
Navigating the Education System: Advice for Parenting Children Who Are Blind or Visually Impaired Tip #4
Tip #4: There’s No Such Thing As Over-Communication With Your Children’s Vision Itinerant
Growing up, my sister and I had a Vision Itinerant who was responsible for meeting with our teachers and parents to go over our IEPs and any necessary modifications. She came to meet with us monthly in elementary school and every so often in middle school and high school. I always dreaded her visits, Continue reading “Navigating the Education System: Advice for Parenting Children Who Are Blind or Visually Impaired Tip #4”
The Importance of Sports: Advice for Parenting Children Who Are Blind or Visually Impaired Tip #3
Tip #3: Provide Opportunities For Your Child To Play Sports
Sports may not be the first word that pops into your head when thinking of extra-curricular activities for a child with vision loss. While some traditional childhood sports like baseball and soccer may not be options for children with low vision, that does not mean they want to sit on the sidelines. Continue reading “The Importance of Sports: Advice for Parenting Children Who Are Blind or Visually Impaired Tip #3”
Why Braille: Advice for Parenting Children Who Are Blind or Visually Impaired Tip #2
Tip #2: Make Braille a Priority
Young children are like sponges when it comes to languages and literacy, so if your child has a degenerative eye condition such as RP, allow them to learn Braille early on, instead of waiting until their vision declines or until adulthood, when it will take far more time and effort. Continue reading “Why Braille: Advice for Parenting Children Who Are Blind or Visually Impaired Tip #2”
Hands
Hands,
stacked and held,
matted and framed
hanging on a hook above my bed.
Four hands. Mine is at the bottom, followed by my grandmother’s, my mother’s, and the tiny newborn hand of my eldest daughter. When a friend took the picture 8 years ago, I had no concept of the significance it would hold for me in future years when the physical hands would begin to perish.
The Importance of Positive Blind Peers: Advice For Parenting Children Who Are Blind or Visually Impaired Tip #1
In honor of Mother’s and Father’s Day, during the months of May and June, we’d like to give all the moms and dads of children with RP and other eye conditions a gift: some free advice from 2 people who grew up with low vision.
Each week, we will be featuring a different tip. We would LOVE your feedback, comments, and any questions you might have.
Tip #1 Find Comrades for Your Child
Spending countless hours researching adaptations and technology for your children is time well spent, but if you’re taking the time to do those things, then also take a few minutes to connect your child with peers they can relate to regarding their vision. Continue reading “The Importance of Positive Blind Peers: Advice For Parenting Children Who Are Blind or Visually Impaired Tip #1”