Choosing Our Struggles

I love to read about other people’s struggles, especially if they are very different from my own and if they have overcome something unimaginable to me.  Whether it’s the personal memoir of an oppressed woman in the Middle East or wise sentiments from a man born with no limbs or a documentary about a wealthy hoarder in New York.

It doesn’t matter whether it’s dramatic, life-altering challenges, though those tend to be the ones that grab my attention, I glean just as much wisdom from writers like Brené Brown and Ann Lamott in their depictions of more common human ailments, such as shame and chemical addiction.

Back when I taught 7th grade, I was the only weirdo English teacher who chose “Life’s Biggest Challenge” as  my students’ major narrative essay topic.  While other teachers were assigning jovial topics like “What I Did Over Summer Break” in which kids could write about al the fun they had riding Big Thunder Mountain at Disney, I was “that” teacher asking 12-year-olds to think about their deepest struggles in life. And how they overcame them or how they continued to face them.  Granted, preteens these days do face incredible challenges, and there were maybe 2 or 3 kids each year who were able to articulate them and put them into any kind of big-picture perspective in a concise essay.  But for the most part, I read handfuls of narratives about overcoming skateboarding or gymnastics stunts that the students had attempted to master all of their lives. Continue reading “Choosing Our Struggles”

Twin Powers, Mud Pits and Guide Dogs

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Jenelle and I telling our kids bedtime stories on a recent shared vacation
My twin sister and I have always had a strong connection despite years of people comparing us to those Sweet Valley High books we grew up reading (yes, I’m clearly the nerdy journalist, Elizabeth, and she is the popular cheerleader, Jessica).

People have always asked us whether we have ESP or any shared twin language. While for the most part, the answer is no, I did awake with strong stomach pains in the middle of the night without knowing that she was going into labor 2,000 miles away and sat straight up in bed the moment she had her second child, on the shared birthday of my older child. Beyond that, we have no known twin quirks. Continue reading “Twin Powers, Mud Pits and Guide Dogs”

Adaptive Skiing

Yesterday was the final day of winter.  And although I am really looking forward to sunny spring days and warm summer nights, I am going to miss all the winter activities.  I recently learned to ski despite the fact that I thought skiing was something that I would never do.  Mainly because every time I have pictured myself skiing, I envisioned heading straight into a tree or some other object/person not within my field of vision.  Although running into objects makes for some great stories and blog material, it’s not my idea of fun.
Maybe it was the Winter Olympics, or my dad telling me about a skier with RP in the Paralympics that inspired me to try cross-county skiing this year and hopefully alpine skiing next year.  I had no idea that adaptive skiing even existed, but once I started looking into it more, I learned that there are multiple organizations and foundations that support skiers with disabilities.  Although I have not yet had the opportunity to receive any special training or adaptive tools, it is something I am looking into for the future.

Continue reading “Adaptive Skiing”

3 Attributes You Will Quickly Develop as a Blind Mom

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A friend recently gave me an article on 4 blind moms featured in “Real Simple” magazine.  I was immediately struck by the beauty and strength of each woman, and I was a bit jealous of them for having such close blind friends.  One of the women, Joy (great name!), talked about how they are each in awe of one another’s feats.  “It’s like each of us has mastered a skill or has a bravery that the others don’t.”  They all have guide dogs and are starting a national group called “Mommies With Guides”.
One of the things they discussed in the article was what they do differently as parents without sight.  This got me thinking about my own parenting, and while I do have some vision, there are definitely some skills I have had to develop as a mom with low vision in order to be a good mom.  Some of these are still works in progress, but they’re definitely the “muscles” that get the most use, and therefore the most strength.

Continue reading “3 Attributes You Will Quickly Develop as a Blind Mom”

More New Beginnings

My sister and I started Doublevisionblog to reach out to people facing blindness from RP, and to educate their family and friends. In the process, we ended up educating and connecting with our own family and friends in ways we had not imagined or originally intended

Connection with others, especially when facing major life challenges like blindness, is like salve for the human spirit. It soothes and uplifts and even heals.

The readers that we have connected with are now part of our story and will forever be threaded into the pain and hope of our plot lines. Continue reading “More New Beginnings”

Take Inspiration: Blind Architect on TED Talks

As we head in to the New Year, I would like to dell out some encouragement to help our readers welcome a strong and hopeful 2014.
Blind Architect, Chris Cowney, gave this incredible TED talk on designing cities with the blind in mind, and how this not only benefits the blind but also offers major advantages for the cities themselves.

Chris Downey: Design with the blind in mind

What would a city designed for the blind be like? Chris Downey is an architect who went suddenly blind in 2008; he contrasts life in his beloved San Francisco before and after -- and shows how the thoughtful designs that enhance his life now might actually make everyone's life better, sighted or not.

My favorite take-aways from this talk are:

Continue reading “Take Inspiration: Blind Architect on TED Talks”

15 Tips for Assisting People With Low Vision

In honor of blindness awareness month this October, I decided to finish this post!  I drafted it this summer and then abandoned it because I found it difficult to write.  For me, it’s like trying to describe my favorite type of movie– I can’t put the exact description into words but I know it when I see it.  And if I think about it enough, I can find words, but it does take some thought.  I don’t like to be cynical, but it would have been easier to come up with a list of 15 ways NOT to help people with RP!  I decided to take the more positive approach, although I couldn’t resist throwing in some of my personal pet peeves. Continue reading “15 Tips for Assisting People With Low Vision”

Fringe Benefits of Blindness

 According to many surveys, going blind is something people fear most, right behind cancer.  I’ve written plenty of posts related to fear and grief and challenges.  But I’ve seldom touched on all the fringe benefits of blindness.
Some readers may think I’m joking, but honestly there are parts of my life that have turned out to be pretty great because of low vision.  So I put together these top 10 reasons blind people lead the best lives: Continue reading “Fringe Benefits of Blindness”

Lessons in Decompression

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I have never been good at letting go. Tense conversations, goodbyes, friendship changes, job transitions, moves….all keep me awake at night far longer than it seems they should.
So it wasn’t entirely surprising when my plane touched down in Seattle 2 weeks ago, and I couldn’t immediately let go of real life to enter vacation mode.
I’ve been in this quaint, picturesque Bavarian-themed village in the Cascade Mountains since the beginning of July, and I’m only just starting to decompress. Prior to leaving for this trip, there were a lot of stresses at home and I pictured this serene, oasis trip in which I just played and played with my children without worrying about my typical daily to-do lists. I had this vision of myself, unplugged and ultra-present. Continue reading “Lessons in Decompression”

Liebster Award

liebsterawardIf there’s one thing writers really need, it’s community with other artists. I have this amazing friend, Emily, who shares my love of writing. We belong to the same writer’s group and have fun drinking tea and/or wine over topics involving creativity, editing, publishing, and the like. She writes a hilarious blog and recently nominated me for a Liebster award. Thanks Emily, for your encouragement and for being someone with whom I can share writing joys and frustrations and engage in super-nerdy conversations.

As part of my acceptance of the Liebster, I had to answer the following 11 questions from Emily: Continue reading “Liebster Award”