Posted by Joy and Jenelle
Sometimes we laugh about it, sometimes we cry about it, sometimes we share news and medical articles about it, sometimes we avoid talking about it altogether, but it’s always there. We’re identical twin sisters who have grown up with RP. We’re now 33 years-old, both married to amazing guys, and have sweet little daughters. Although we look a lot alike on the outside and share the same challenges of vision loss, we often have different perspectives on the disease and each deal with it in our own way. We wanted to create a blog mainly for other people struggling with RP, as we find it helps to feel connected when facing the day-to-day challenges of living with RP.
We also hope that it can give family and friends of people with RP, Ushers, and other similar diseases a glimpse of what it’s like to live with these types of challenges. And frankly, this is therapeutic for us, so even if no one (besides our mom) reads it, we’re gonna write it anyways!