Originally posted on Bold Blind Beauty on June 7, 2016
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“I don’t understand why I didn’t get the job,”

I said to my supervising teacher, “You gave me such stellar reviews from my student teaching, and I feel like I described my teaching style and goals really well in my interview. I have a 4.0 GPA, and the students loved me!  Did the principal say anything to you about why he didn’t hire me?”

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Photo Credit: Morry Angell, Guide Dogs for the Blind

My supervising teacher hesitated.

“Well, um, he did mention that you didn’t maintain strong eye contact throughout the entire interview.  He said your eyes didn’t always follow where he was pointing when he was explaining the school set up. He said your eyes kind of trailed off, and it made him skeptical about you.”

Her words came as a swift, unexpected punch in the gut.

That was 13 years ago, and I cringe thinking about the conversation, but not because I am embarrassed about my eyes, like I was then.  I cringe now because I remember how much time and energy I wasted trying to hide my vision loss.

The principal had no idea that I literally couldn’t see his finger when he moved it even a half inch to either side, much less follow the sweeping motion of his hands.  My supervising teacher knew about my loss of peripheral vision and even that I was legally blind, but I had asked her not to say anything because I didn’t want it to keep me from getting hired.  I didn’t use a cane in my interviews, or really much at all at that point in my life because I didn’t want to look “blind”.

Fortunately, my supervising teacher did not listen to me when I went to my next interview, choosing instead to mention my vision loss as one of my strengths, stating how hard I worked and how well I communicated with the students to compensate for my vision loss.

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Photo Credit: Morry Angell, Guide Dogs for the Blind

That principal hired me.

I held my own as a middle school English teacher for several years, but I continued to struggle much more than I needed to because I still spent a great deal of time and energy trying to do everything the “sighted” way.  I still felt very ashamed of my vision loss, and I think that came across to my students and colleagues.  I always felt that I was just one incident away from disaster.  I had several incidents where parents thought I had purposely ignored them in passing, and one even complained to the school dean about it.  These incidents unnerved me and made me feel like people were getting closer and closer to finding out the truth about me.  The truth that, because of my eyesight, I was incompetent.

When a 7th grader with special needs fell asleep while I was reading a book to the class, and I failed to notice him sleeping outside of my line of vision, the special education teacher’s aide reported this to her, and she stormed into my classroom and demanded an explanation.  I spoke with her privately about my vision, and she was irate and said that she couldn’t trust her students with special needs in my classroom.  I became terrified that she would “tell on” me to administration, and since the principal who hired me was no longer there, I wasn’t quite sure if the new principal even knew that I was visually impaired and how he would feel about it.  Since I was still one year away from earning tenure, I knew that the school could legally lay met off at any time, without giving any reason, so I would never even have a case if anyone discriminated.

So, despite my outstanding observation reviews and the fact that I was a creative, organized teacher and had spent 2 years and a small fortune getting my master’s degree, I chose to resign from my job.  My reasons for leaving were numerous, and as a new mom who wanted to spend more time with my baby girl, my reasons made sense to all those around me.  It’s just that no one, aside from my husband a couple close friends, knew that fear and shame were among the top reasons I chose to resign.  I figured that if I were the one who quit, there would be no chance of me ever being fired.

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Photo Credit: Morry Angell, Guide Dogs for the Blind

 

I was consumed with blending in and not appearing weak, which took away all of my strength.

Thankfully, I’ve come a long way over the past 9 years since I left my teaching job.  I now get around very well with the help of a guide dog. I have also gone through training in technology and other life skills to make everyday living more accessible.

Ironically, now when I use my guide dog, people continue to make comments about my eye contact, except the exact opposite opinion from that first principal.  “But you don’t LOOK blind.  You’re looking right at me and making eye contact!”

That’s the tricky thing about degenerative eye conditions like Retinitis Pigmentosa (RP).  Whether you’re using a mobility tool or not, people are constantly asserting that you have “not enough” or “too much” vision. It’s akin to visual purgatory.

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When you linger between the worlds of sight and complete darkness long enough, a few things become apparent.

  1. There are certain tools available, such as canes and dogs and magnifiers and smartphones, that can be helpful and do not have to define you.
  2. The general public has a very black and white view of blindness, and when we’re out in the world, living our lives with whatever tools help us, we are often educating people about the wide spectrum of sight loss.
  3. Sharing stories of vision loss helps connect us and changes stigmas about blindness

I’d like to say that shame over vision loss is something that you just wake up having conquered one day, but the truth is that it’s a million little baby steps.  And on certain days, it still takes a lot of awareness, self-compassion and processing. .

I cannot pinpoint one breaking moment, or even one particular thing that helped me move forward.  It was a series of breaking moments and a series of steps forward.  Part of it was having my daughters and wanting them to grow up with a happy mommy; part of it was sharing stories with my twin on our blog; part of it was getting a guide dog.

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Photo Credit: Morry Angell, Guide Dogs for the Blind

It was only when I began to lean into that part of myself that I always thought of as flawed that it truly began to lose power over me.

I may not be teaching in a classroom right now, but I am now confident enough that I could go back at any point in the future, For now, I am homeschooling my 2 daughters, who are growing up with a mom who doesn’t let the stigma of blindness stand in her way.

And they don’t seem to care whether I make too much eye contact, or not enough.  I hear them tell their friends their mom is “half blind”, and I suppose that is half true.  I am not concerned with correcting them or having the most accurate label to describe me and my vision.  My only concern now is living the most authentic life possible and spreading the message that we do not need to be ashamed of blindness.

Be sure to connect with Joy and her twin Jenelle on their social media accounts:

 

 

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9 thoughts on “Women On The Move: Joy Thomas (repost)

  1. Joy and Jenelle,
    WOW!!! I am so inspired. You both write so beautifully. I want to live authentically, and human beings like you show me how..a million tiny steps at a time.
    Grateful hugs ?
    Kevin Kuhn

    • Thank you, Kevin! You live such an authentic life as well, and we’ve learned a lot from you over the years. Thank you for all your encouragement.

      Hugs,
      Jenelle

  2. Hello Joy, thank you for sharing your story. There are so many people out there that struggle with the loss of their vision. However, not everyone overcomes that hurtle. I believe that your experience can inspire others to realize that they absolutely can be capable, beautiful people, with a visual impairment.

  3. Joy, your authenticity shows in your wonderful writing. We don’t need to be ashamed of our blindness! Three cheers. Thank you for showing others living wholeheartedly is so rewarding. Love your daring spirit.

  4. Dear Joy,

    This story resonated me on both a personal level as a person with some varying visual impairment (due to Multiple Sclerosis) and as a new rehabilitation counselor starting to work with people with visual impairment. Particularly trying to blend in or to approach tasks as a sighted person, yet felling like one is failing. In my personal experience as a person with MS and before it impacted my vision, I used to liken it to living in the closet. The slogan of MS is also “You look so good”.

    As a professional I found many of your insights and experiences mirrored in my clients as well. A common theme among many with any chronic condition seems to be one of going through several stages of grief adapting (.e.g. grief, isolation, hiding or trying to pass, ongoing adapting etc.). Your blog and this post is no doubt helping many of us in this process.

    Kindly,
    Daniel

    • Thanks so much Daniel! I used to think that Jenelle and I were the only ones who struggled with issues of shame or hiding our vision loss, but the more I get to know people in the blind and visually impaired community, the more I, too, see that this is a common theme. What state are you a rehab counselor in? Thanks for doing the work that you do– rehab counselors make a big difference in helping people become independent. I’d love to talk with you more! Feel free to e-mail me at joyellenthomas@gmail.com.

  5. We should all seek out an attitude that says “My only concern now is living the most authentic life possible”
    b

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